Patient Information and Resources

Resources

Below is a list of websites containing resources for patients and families with CODE disorders.

Caring for a Central Line at Home
https://rarediseases.org
https://www.niddk.nih.gov
https://ncats.nih.gov/
logo_mvid
https://www.mvid-central.org

Advocacy And Patient Organizations

tkostrong
http://www.tkostrongfoundation.org
EveryLifeLOGO_TRANSPARENT_RGB
https://everylifefoundation.org

Vanderbilt University Medical Center

Boston Children’s Hospital

University of California, Los Angeles (UCLA)

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