Collaborating with PediCODE

The PediCODE consortium was established to accelerate research in CODE disorders by conducting basic and translational research, and provide resources and tools for the research community. Our primary goals and initial studies are outlined in our Goals and Studies pages and we welcome collaborations with investigators around the world. We aim to use PediCODE resources to advance CODE science in areas ranging from basic laboratory investigation to clinical therapeutics, epidemiology, and other aspects of patient-oriented investigation. We are dedicated to conducting research in CODE disorders aimed at addressing key scientific and clinical issues that are a high priority to both patients and physicians.

Proposing New Collaborative Research Studies

If you are interested in collaborating with the consortium or specific investigators in the consortium on studies that relate to CODE disorders please contact the Consortium Director, Dr. Martín Martín with a brief summary of your project. If the proposal seems feasible, you may be asked to provide a more detailed protocol summary to the entire PediCODE Steering Committee.

Institutional Partnering with PediCODE.

If you are interested in partnering with the PediCODE Consortium at an institutional level please contact the Consortium Director Dr. Martín Martín

Accessing the Biorepository

If you are academic researcher and would like to potentially access specimens or data from the PediCODE Biorepository please fill out the request form below. Requests for data or specimens are initially reviewed by the Biorepository Director Dr James Goldenring.

Once the initial request is reviewed, we may ask you to provide further information on the related studies. Data and specimens that have been approved for sharing are de-identified and will require an appropriate materials transfer agreement with the PediCODE site providing the sample/data.
 
Data and images from the PediCODE Tissue Atlas are publicly viewable. Further aggregate data from our studies may also made accessible in the future via this website. For access to original image files or data please contact the Biorepository Director.

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